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May 21

Five years ago today

Arizona onyx headstoneFive years ago today…

Five years ago, at 7:30 a.m., I hugged my daughter and told her to drive safely.

“Ok Mom. See you at lunch time!”

Five years ago, at 11:00 a.m., two DPS officers came to my work with “something important to talk to me about, regarding my daughter.”

Five years ago, at 11:30 a.m., my friend was driving me the hour-plus drive to St. Joseph’s Hospital in Phoenix.

Five years ago, at 1 p.m., we arrived, but I wasn’t allowed to see my daughter immediately.

I had to wait….  I only knew she was in “extremely critical condition.”

Five years ago, after what seemed like an eternity, the doctor and two aides took me into a small room to tell me that my only child and the joy of my life had irreparable brain damage and a severed spine.

Five years ago today, life as I knew it ended.

 

Today, the pain is no less. I have simply learned how to live with it. Anniversaries make it harder, somehow. I relive that day to some extent every day, but on the anniversary of the accident, my heart breaks all over again. I miss her so.

 

I love you, baby….

 

 

Mar 08

Donate blood, donate life

The beating of a heart

I sit next to the man in whose chest my daughter’s heart beats

Donate blood lately?

I had the honor, if not pleasure, of donating blood recently when the Red Cross Bloodmobile visited our office complex. While there was a good, steady stream of donors, most people in our building did not participate.

Why? Well, of course there are many reasons people cannot donate, and the questionnaire for donating outlines many of them. People taking certain medications, those who have traveled out of the country to certain places, and people who have had certain illnesses may not donate. However, most healthy folks can – but don’t – donate.

Yes, they stick a needle in your arm. Yes, sometimes it can be a bit uncomfortable. Yes, you can feel a little woozy afterward. Sometimes there are other temporary side effects.

Big deal.

A person needs to weigh at least 110 to be able to donate. My weight is just above that “legal” limit. I have naturally low blood pressure, and with other minor complications, it often takes much longer for me to produce the needed amount of blood. While some donors take a matter of a few minutes, I’m usually there for half an hour or more. I faint easily, so have to be very careful for a couple of hours after I donate. I often feel light-headed and occasionally nauseated afterward. The needle site often bruises, regardless of how careful the phlebotomist is. Donating blood is not exactly a pleasant experience for me.

I donate every chance I get.  

We’ve all heard how giving blood saves lives. It does. If you are ever in need, you will wish you had donated. Daily, many people are in hospitals in need of blood. Some die without it. By donating, you really can save lives.

When my daughter lay dying in the hospital, it was donated blood products that kept her alive long enough so that she could donate in turn. She donated her heart, lungs, kidneys, liver, and pancreas to five people, enabling each of them to live a longer life. She died, but five people are alive today because of her – and because of the people who donated blood for her.

Donating blood is the least I can do. I do it several times each year… and one day I will donate my organs too, to possibly save even more lives.

No excuses. Donate life!

 

Mar 08

Dancing again – my path to (almost) happy

dancingIn the months following my daughter’s death, I received many “gifts.” One gift came unexpectedly about four months after the accident. It was a letter from one of her classmates that included a hand-written “prayer” Ava had created for the classmate’s art project. On the small, brightly colored square of fabric were inked the words, “I just want my mother to be happy.”

Amidst my crushing heartbreak, I made a solemn promise to my beloved Ava that I would try.

Now, as the calendar steadily approaches the fifth anniversary of her death, I am keeping my promise. I can honestly say, when asked, that I am doing well. Happy? Yes, I am, but with a permanent caveat. There is an ache within my joy. There always will be. 

I have struggled mightily to honor my wonderful daughter’s life rather than to memorialize her death. And it is a mighty struggle. There is rarely a day I don’t somehow revisit parts or all of that nightmarish day in May. That entire day carved itself into my brain with such force that scenes still play back like videos in my head, rewind and play again. While I don’t remember much of what was said, I remember everything I saw and exactly how I felt. And then, of course, there is my overactive imagination that creates the visuals corresponding to the actual accident. How the car rolled… what she felt… how she screamed… the horror of the first responders who found her and re-started her heart…. How I wish I could turn off those images!

But I cannot. I live with them, as I live with the pain of my loss – the world’s loss of this amazing young woman.

And so, it is a mighty struggle to keep the promise I made. But I am, indeed, keeping it. I have adopted three wonderful girls who help to fulfill my need to mother. They re-create a future for me that was wiped clean when Ava died. I have returned to a city I have always loved; found a new, challenging job that I enjoy; and found a new home that I adore. I am reconnecting with dear old friends and making new ones. I have even started dancing again – something I dearly love and haven’t done in years.

Am I happy, you ask? I can honestly respond in the affirmative.  But within that happiness is a chronic, mortal ache that I will carry to my grave. And behind my smile will always be my tears.

But I am dancing again…..

 

Oct 12

Turning a page within the same book

Arizona onyx headstoneI woke up this morning – as many mornings – with you on my mind.

It’s been four and a half years since you left me. Four-plus years of heartache and struggle; 54 months of missing you so badly it hurts; lifetimes and ages since I saw the sparkling eyes, heard the infectious laugh, felt those soft-yet-strong arms around my shoulders. The missing you never stops.

But I carry you in my heart, everywhere I go.

I am leaving this town. The town where you, as a determined and amazing 12-year-old entered high school; the town where you’d walk to the library to spend the hours until I came for you; the town that didn’t understand you, but loved you anyway; the town where your grave and stunning marble headstone grace the cemetery.

But I’m not leaving you.

I am moving away. My heart has mended to the extent it will, which is to say I carry an amputee’s scars and pain forever, but I’ve learned to live with it. I can honestly say I have learned to be mostly happy again, largely because of this town and its inhabitants – the same town I am leaving behind.

There are many reasons for my departure – jobs, opportunities, social connections, even weather – but a big reason is you. Everywhere I turn, I see the past here. Everyone I know knows my heartache and loss. Everything I do, all the routines, remind me of your absence. Everywhere I look, I see the holes you left. And so, in a significant way, I am leaving behind a little bit of my pain here in this loving, caring town. Where I am going, only a few know my sorrow. There is a cushion, a kind of warm, protective wrapping in the relative anonymity of a city.

I may be leaving a portion of the pain behind – the daily reminders that surround me – but we take our problems with us. I know that. All I have to do is look in the mirror, and I am reminded of all that is lost.

But I carry you in my heart, and when I am happy, I can see your light shining through my eyes.

And so, I depart – taking you and my heartache with me; leaving behind the people and places that remind me; starting “fresh” with some hope in my heart.

I love you my dear, lost daughter.

I’m turning a page….

 

Aug 08

School begins; I watch my children grow

School starts today, and parents throughout the area are breathing a sigh of relief as the familiar routine begins again.

Summer, for parents of younger children, often means a long string of camps – here they are Camp Imagination, town-sponsored activities camps, Science Camp (hopefully again next year), Music Camp, swim lessons, volleyball and basketball camps, and more. Along with this wide variety of activities comes the burden of transporting the children to and from, and filling in the times between camps with some sort of activity and/or supervision.

It’s exhausting, as I can attest from personal experience. This year was a bit better for me, since I have two delightful teens that provided most of the transportation and off-time supervision for my youngest. However, as summer officially ends with the beginning of school, I am tired (as are my teens, I suspect), and ready for the steady routine of school to begin.

And while each school year offers that familiar routine, each year is different, presenting new challenges. In my case, one child (no longer a child) is leaving for college, one is entering her senior year (a budding adult), and my littlest (not so little any more) starts her first year of middle school. All of these rather large changes require leaps of maturity from each child; a parent’s attendant worries trail behind: How will she handle it? Will she be up to the challenge? How can I help her?

For my college-bound daughter, we go through the many small rites of passage into that first big step away from home, such as amassing items for housekeeping in the dorm – her very own computer, sheets, towels, and laundry soap – things she won’t have to share with a sister or parent. Such excitement in even the smallest changes! The big changes of college itself are still ahead and a mystery – but so thrilling. This young woman is counting the days until we make the drive to her new home-away-from-home.

The new senior at the local high school has a challenging mix of emotions with which to deal. She is excited and proud to have reached the pinnacle of achievement that is her senior year, but she is also likely feeling, understandably, a bit resentful at being left behind by her older sister. Impatient with the drudgery of familiar routines, part of her wants this year to be already past, so she too can be flying off to new adventures. Hopefully the flurry of upcoming activities and her own preparation for graduation and college will soon overcome that impatience. She’ll find she’s on her way too.

Then there’s my “little one,” who would really prefer to stay little forever and cannot. She is being thrust into middle school as her abilities and age dictate, without regard to what she would like.

“Mother, I wish I could go back and be little again,” she told me once.

“Oh baby,” was my response, “join the club! Most adults would love to turn back the clock too. But we can’t, can we?”

“No,” she said, clearly unhappy with the logical response.

So how will this girl who never had a chance to be truly “little” deal with middle school? Time will tell.

And mother will worry.

I have explained my job to all my daughters repeatedly over the years. My job is to prepare them for life, to help them fledge their beautiful wings and to take flight, to watch them soar away from me. My job is to help them achieve their dreams and goals as best I can. A parent’s job is the epitome of “planned obsolescence.” We must make ourselves unnecessary to the child, so that the child can fly with strength and self-confidence into adulthood.

It’s a hard job to do, to teach the ones you love most not to need you anymore. But then, love is much stronger than need. And love lasts forever, whereas childhood is oh-so brief.

And so, the new school year begins.

 

Jun 08

Graduation, Memorial Day connect in mixed emotions

Gathering fallen caps after the traditional cap-tossTwo very special dates occurred recently – graduation of the class of 2012 on Friday (May 25), and Memorial Day last Monday (May 28) – one a joyous celebration of accomplishment, the other a heartfelt tribute to tremendous loss.

I attended graduation last Friday; once again a proud mother watched her daughter cross the stage and receive her diploma; once again the daughter ranking at the top of her class; once again a budding young woman is about to embark on her higher education adventures.

The emotions were so many, so mixed, and some so nameless….

I cried and laughed with her and our mutual friends, thrilled that she has achieved so much against some pretty stiff odds. Her younger sister will be walking across that same stage in only one year and then off to her college dreams, and I will feel these feelings once again.

I attended graduation six years ago, too. I watched my first daughter cross that stage. Joy and sorrow mixed as I witnessed my “baby” grow up. It was such a bright beginning with such a promising future for her… and it ended a mere two years later.

Again, those many, mixed, and often nameless emotions are stirred.

My youngest has “graduated” too this year. She will be moving into middle school as a sixth grader. Already? Wow. Mother’s worries abound as she takes this next, sometimes difficult step toward maturity.

I am filled with a parent’s perennial bittersweet mixed bag of feelings – proud and happy at her children’s successes and growth tumbled together with sorrow at time’s incredible speed of passage, and the loss of youth.

My joy in my children is indelibly tied to my loss; it cannot be otherwise unfortunately.

And that brings me to Memorial Day, observed a mere three days after graduation, the connection between the two closer for me than just the proximity on the calendar.

Memorial Day salutes those brave men and women who have fought for our country and died in that service. It’s a day to salute all veterans. It is a day to remember.

And so I remember. I think warmly of my father, who was a Marine pilot, flying Corsairs off an aircraft carrier in the South Pacific during World War II. I salute his service, but I also remember him, the loving, sweet, small man – who got so much smaller as he aged – who could make everyone in the room feel comfortable no matter where he was.

Dad has been gone more than six years, and I miss him every day. Dad and Mother could clear a dance floor – and often did – with their custom steps and stylized “Fox Trot.” And then I remember Mother too, gone now 11 years, and how much I miss her, my first and best friend.

Which brings me back around to parenting, children’s growth, my personal growth, and these many graduations.

Graduation marks the end of an era for both child and parent. It marks the closing of one door, and the opening of the next – the inescapable passage of time and the headlong flight into the future. It marks the point where parents have to let go a little – or a lot – whether its promotion into middle school, graduation from high school, or – in about four years – graduation from college. Each time, Mom and/or Dad have to release their hold a bit more. It’s a hard but necessary thing to do. Love and loss….

I remember explaining to my daughter Abigail, when she was very small, that love is a very strange thing. It’s one of the only things in the world that the more you give away, the more you have. I am so grateful for the love I have “given away,” and for the continual expansion of my heart as I get so much back.

Congratulations graduates! Here’s to all our futures!

 

Apr 13

Time to die, Part 3: There is a season

Back in August I wrote about a near-miss with my oldest dog. I had thought it might be time to put her to sleep, but fortunately I was wrong…. then.

She had been struggling with all sorts of weird health symptoms for months. Late last fall we discovered she had diabetes. After changing her diet, giving her insulin and getting her blood sugar regulated, Sass was a new dog. She became playful again; her coat took on a new gloss, her eyesight even improved. She made it to age 13 in January, a chipper, happy old lady. Sure, I was giving her insulin shots twice a day, and her arthritis still prevented her beloved long walks and lizard-chasing, but she was enjoying life again.

As I said last August, I had dodged a bullet then, but the gun was still loaded. Last week, I came home from work to find old Sass in bad shape. She wouldn’t eat (which is unheard of), and could hardly stand. I rushed her to the vet, who kindly stayed open after hours to see her. We couldn’t tell exactly what was wrong, but it was obvious it was something serious and taking her down fast. We agreed she likely wouldn’t live through the hour-plus drive to the emergency veterinary hospital in Glendale. After much discussion, tears and worry, I made the decision to put her to sleep.

Sass died with her head in my lap, looking at me with her lovely dark eyes. I cried all the way home and most of the night. My best friend for 13 years was gone.

The next morning, still weepy with swollen eyes and aching head, I knew I had done the right thing.

I have watched death too closely and too often. I was at my mother’s side for the last year of her life. She died as peacefully as possible after losing an ugly battle with lung cancer. Her last days were spent in the loving care of hospice. I held her hand as she left this earth.

I was at my father’s side too, five years later. He lived with me for the last months of his life as he fought a rare and deadly cancer. I watched and wept as the hospital’s intensive care unit kept him alive for three weeks, promising me he’d recover. Finally, an honest doctor answered some of my hard questions, and I removed Dad to hospice. There, he have me a wonderful last hug, told me “thank you” in a hoarse whisper, shut his eyes and left this earth.

I was at my daughter’s bedside too, when the doctors said she’d never recover from her injuries. I held her hand as her brain activity declined and vanished. In agony, I kissed her and sent her spirit on its journey with my blessing and my tears.

I was there when my teenagers’ grandmother struggled with heart issues too massive to survive – and again the ICU unit kept her alive for months, when, in my opinion, she should have been allowed a dignified death. We were there moments after she passed.

As I sat on the floor with Sass’ head in my lap, petting and talking to her as she crossed that “rainbow bridge,” I knew I had done the right thing. I was heartbroken once again to lose a beloved family member, but it was her time to die.

I believe that to allow a loved one to suffer at the end of life, just because we can’t – or won’t – believe “it’s time,” is morally wrong. This planet we walk on is a temporary place where we are supposed to learn a few things, hopefully. Most of us believe our souls journey to a better place after this life. Why are we so reluctant to allow our loved ones to go there, when it is clearly their time? The answer is selfishness. We don’t want to lose them; we don’t want to miss them; and maybe we’re a little uncertain about that better place?

“There is a time unto all things, and unto all things there is a season.”

 

 

Mar 06

Another mother grieves

A grieving community...

Our little town – and the world – has suffered the loss of another remarkable young lady, and another mother has joined the most horrible club on earth: the club of grieving parents.

I am so very sorry for this woman whom I have never met. She lives in my town. Her daughter was friends with my two teenagers. We have mutual friends, friends in common. We are – fortunately – surrounded by the same loving, caring, supportive community, and because of that she might survive this horrific loss.

I say might, because the loss of one’s child is the most horrific loss anyone can withstand. The pain never goes away, the wound never completely heals. Everything, absolutely everything constantly reminds the bereaved of the magnitude of her loss.

I lost my only child (she was my only child then – I have since adopted a family) nearly four years ago. The pain is still excruciatingly fresh. I still can feel her touch, hear her voice, her laughter, smell the fragrance of her hair… I still see the hospital bedside where she took her last breaths, hear the machines keeping her lungs filling so she could live long enough to donate her organs and save five lives. I still remember the monstrous day of my daughter’s car crash. It’s like a horror movie in my head, replaying often and never at will. I wish I could forget that day – the day that ended my daughter’s life, and ended my life as I knew it.

But the memory replays frequently.

And now, another mother begins the same horrific journey. She is in hell right now – I know because I was in hell for a very long time. An important and large part of me died when my Ava died. I know how hard it is to hang on. I know this mother is trying desperately to hang onto herself, trying to find a shred of herself to hang onto – because as her daughter’s spirit leaves this earth, a great deal of her own spirit is firmly attached.

How do we survive? So much is gone when one’s child dies — so much more than “just” a child. A mother’s identity is embedded in that of her child. We live for and through our children. (I speak for mothers because I am one. I know a father’s loss is incredible as well.) Parents’ futures are tied to their children. When that child is no more, the future is erased. All the “looking forward tos” are wiped out: no engagement, graduation, wedding, grandchildren, etc., etc. It’s all just gone.

So much dies when a child dies. Hopes, dreams, futures, identities, plans, promises, laughter, togetherness, friendship, shared experiences, connectedness…  She’s gone! How can we possibly continue without her?

But somehow we do… I found a way. Rather, I am finding a way, because it is a continual journey and a constant struggle. I know I will never be truly “healed,” I will simply get better at living with the chronic pain. I hope and pray for this newly bereaved mother that she finds a way too.

We all grieve differently and choose different paths towards healing; however, it is essential to somehow find purpose and meaning, something to get up for in the morning. We survivors try to find purpose in life, create something good out of the horror. We strive to build something positive out of the wreckage of the grief. Meaning out of chaos, if possible.

My hand is out in friendship to this mother, if she needs a companion on the grieving road. It’s a path I know well.

God bless the spirit of Breanna Tharp. Bless her mother Ellen, and all her family and friends. I am broken hearted for you all.

 

Dec 29

Christmas and grief – expressing the inexpressible

 

 

Written at Christmas, 2010Smile for a 'forever home'

‘Spilling over’ is bound to happen.

The Christmas season has arrived, and with it all the emotions entangled therein.

I have always loved Christmas. Since I was a small child and watched my mother carefully trim the fresh tree that my father had cut the day before. Christmas is a time of wonderful smells, sights, sounds, and what I’ve always felt was nothing less than magic.

As I grew up and older, Christmases remained magical. From delicious baking projects to the tradition of obtaining one very special ornament each year; from the trinkets found in stockings to the surprise gift that would bring shrieks of joy, Christmas has always been a favorite time of year for me.

When I lost my daughter more than two years ago, everything changed. It felt as if all joy had suddenly been erased from the world. Christmas was exceedingly painful. I marvel now how I made it through that first year; thankfully I had enormous family, work, and community support.

This is now the third Christmas without my eldest daughter (who would be 21). Much has happened to me since her death, internally and externally. Probably the most significant addition to my life – “my little lifesaver” – is my daughter Tina, who joined me a little more than a year ago. My Christmases are once again blessed with a child in the house.

And what a blessing she is. A blossoming 10-year-old, my little girl is a shining example of what joy can do. A child from an extremely abusive background, little Tina’s heart has never lost its joy and abounding good nature, regardless of the trauma she has endured. Understandably, she struggles with some things – lessons that were never taught, simple things like riding a bike, raising her hand, speaking quietly – but her smile is her most common expression. She even wakes up smiling.

Joy – something that I thought had left my heart altogether – is written all over the face of this bright-eyed optimistic little girl who now calls me “Mommy.” And slowly, steadily, she’s finding a way to put back the sparkle that’s been missing in my own eyes.

As we decorated the Christmas tree, my emotions began to pile up. And what a range of feelings they encompassed: pleasure in the work, sorrow in who’s missing; delight in one daughter’s company, despair in another daughter’s absence; mixed pleasure and pain in recalling each ornament’s special history. Naturally for me, the tears eventually came.

“Are you sad, Mommy?” asked Tina.

“Yes, honey, I’m afraid I am.”

“Don’t be sad,” she said as she wrapped her arms around me. “I love you.”

Oh boy…. from the mouths of babes.

For the past 15 months I have watched – and helped – this young lady explore her new world. She has, in that time, achieved honor roll, begun karate and climbed two levels, discovered she enjoys playing piano, and truly found her way into my heart as only a daughter could.

In that same time, my grief and I have achieved an uneasy truce. I guess, as George Elliot so gracefully said it, I have stopped wrestling with it and come to accept it as a life-long companion. I have also accepted something even more profound: there is new joy in my heart.

I like to think I have a reasonable grasp on the English language; however, I believe there are no words for the mixture of emotions that all this brings. Tears still come often, but as I explained to Tina:

“It’s ok honey; Mom’s just spilling over a little.”

We are looking forward to a wonderful – magical – Christmas season, and wish the same for everyone. And if you see me “spilling over,” not to worry….

 

Dec 14

No maps to traverse landscape of grief

We had fun traveling together

(Written in 2008)

Six months ago, I lost my only child to a fatal car accident. She would have turned 19 last September, and I would be planning her visit home from college this Christmas, if that one moment in time had not occurred.

Christmastime! Normally, Abigail and I would be chatting on the phone or over the computer lines about Christmas-present secrets, surprises, what goodies to bake, what decorations to buy… plans, plans, plans. We were close, she and I.

How does one keep breathing, continue waking up every day when someone so dear is gone? I marvel each morning that I am still here, still opening my eyes to the beauty of the sunrise, to the wonder of the day. It always seems somehow simultaneously miraculous and wrong that I should still be on this earth and my daughter is not.

What maps are there for grief? What guideposts? Counseling – for me – was decidedly disappointing. Books are plentiful and occasionally helpful. Support, love, listening ears and solid hugs from friends and loved ones are priceless and welcome. But nothing changes what is. Nothing brings back the missing person.

The pain of all that is gone doesn’t stop.

Grief is a self-involving emotion. It pulls us down into the darkness of our own hearts and tends to exclude others. It is an injury to the soul that is generally not visible on the surface. We who grieve are the walking wounded, but our wounds are deep inside where the world cannot see.

Our culture dismisses grief. We get three days off from work for “bereavement,” as a general rule, and then we are supposed to be “over it,” and back to normal. Fortunately, my place of employment is filled with understanding friends who continue to support my challenges, but most people are not so lucky. The truth is, those who grieve do not get “over it” quickly. Depending on the loss a person suffers, it can be years – perhaps a lifetime – before the grief fades. What happens more surely is the pain “softens” a bit, but the soul’s wound may never fully heal.

Doctors, counselors and well-meaning acquaintances immediately suggested I take pills – anti-depressants – to help with the pain.

“I’m not depressed,” I explained, “I am grieving.”

But in today’s culture, there is no room for grief. We are told to take a pill and feel better. Drugs are intended to treat sickness – like clinical depression perhaps. Grief is not a sickness. Grief is a legitimate emotion that, if bottled up or drugged down, will find its way out eventually. And although I want very much to “feel better,” I need to feel this grief. I don’t want to be numbed and anesthetized. I need to miss my child, my funny girl, my best friend.

But it does hurt – all the time.

My mind fights reality.  I want so badly to go back to that brief moment one sunny May morning and make something different happen, change some tiny detail that would alter the tragic outcome. But that is not possible.

We cannot change what happens to us. Life presents challenges, obstacles, tragedies over which we have no control. Feeling a loss of control can lead to a sense of powerlessness and bitterness, and true depression can take over where grief leaves off, if we let it. That’s where we do have control.

We can’t control what happens to us, but we can control how we respond. We have control over our actions, our goals, our words and deeds. In a nutshell, we can control who we become, and thereby control ho

w (and if) we begin to heal our grief wounds.

Coming through grief is like struggling through an uncharted landscape. It is difficult and mostly unpleasant, with hills and valleys. As time passes, the hills are a bit higher, the valleys a bit less low. I focus on what I can control and try to become a better person. My daughter wants me to be happy – she said so often. And so I strive to be.

 

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